So why has today been so hectic? Well i finally fell asleep at gone half 6 this morning, having had massive sickness and body temp fluctuations in the night. My carer came and changed me this morning, and my prescription is still in the back of the pharmacy van, which has broken down.. This is essential medication! After over 12 months of asking, were finally getting medical waste bags, which means, our wheelie bin wont be full of my continence pads any more, yes i am double y incontinent due to ME . My gp took away with him a copy of ‘ voices from the shadows’ on tuesday, its an excellent video on the true impact of severe ME on human life. We got a phone call to say friends are coming to visit. I can normally only manage a short visit, and when people live so far away..its hard to ask them to visit. It really does me good when they come though, and asha loves the company.

Asha has had a tough two years, but she has coped very well, thanks to having a brilliant father, us having a few very good friends, and a home edd group who have constantly offered her support and a safe place to play. She is involved with the young carers now, and on saturday, is looking forwards to a trip to the zoo. On tuesday she starts her manderin lessons. And this friday is off to visit some friends with steve. She has played at home for a lot of the last two years, but she is happy, and although at times, weve considered school or flexi school for her, she has flatly refused such ideas.

She has recently been delving through beanos, and harry potter videos, like a child possed, luckily for us, a large second hand dealer, has kept up our trade relationship, and weve managed to get hold of old beanos at a reasonable price to satisfy her hunger! She also went through a massive myths buster obsession and was fascinated by the victorian era for a while.

Yesterday we played with friends at one of the home edd groups, and climbed trees..and swung on rubber tyres (as you do)

Photo of Asha, taken by A. Munro, with thanks..

We have also spent time just playing and being quiet, listening to audio books, and chilling out.. Loads of visiting of friends and just well you know.. being busy!

However now, we are moving forwards, Asha has had a LOVELY birthday with new friends at two new Home Education Groups and met up with some of her friends locally from CLAS.

We have been playing LOADS of board and card games lately, she really enjoys the RSPB bird card game, a flowers card game and an 1970′s card game called “around the world”

For her birthday we also bought her a co-operative game called “princesses” we have played it a few times, and we all enjoy it.

Yesterday we had a wet day on Anglesey with some lovely friends, and today we have been and got my wing mirror replaced.. yes it got smashed again :/

http://www.itv.com/wales/changing-faces18692/

I have a couple of books about Canals which i shall read to her this week.

She also enjoyed seeing the cows in the fields close up, and the ducks in the weir.. it was lovely, and a pity we didnt have more time at the aqueduct to just sit.. but there is always a next time!

Feeling the drive there and back, was a bit much (we would have had to have left before 8 am to arrive there on time) One of the lovely home education families kindly invited us to stay.. It was amazingly kind of them, and we really do appreciate there generosity, and kindness.

Asha has also thrived on three days of socialisation, which means she really is ready for a few days at home again….

n Anglesey,

and Asha had a wonderful time a at the party. Especially as they did beautiful things, like make natural pictures, and played natural games…

Asha chose to have the rather small and gentle Alpaca, ( (Vicugna pacos) is a domesticated species of South American camelid. It resembles a small llama in appearance. Alpacas are considerably smaller than llamas, and unlike llamas, alpacas were not bred to be beasts of burden but were bred specifically for their fiber. Alpaca fiber is used for making knitted and woven items, much as wool is.)  to lead, and what a great choice it was!

She then changed to having a llama for a while…  (

The llama (Lama glama) is a South American camelid, widely used as a pack and meat animal by Andean cultures since pre-hispanic times.

The height of a full-grown, full-size llama is between 1.7 meters (5.5 ft) and 1.8 meters (6 ft) tall at the top of the head.)

(At birth, a baby llama (called a cria) can weigh between 9.1 kilograms (20 lb) and 14 kilograms (30 lb))

And then decided that it would be kind to share the Alpaca with one of the little ones… who really was too small to manage her on her own!

After all children were suitably happy and exhausted we trundled off to the beach, for a play in the water and sand.. and a great time was had by all!

The three girls however played with the horses all afternoon, quietly, and happily… I love pretend play!

The LEA however have decided differently and we had our first encouter with the LEA.. and to be honest I am not impressed!

Anyway, Asha still had a lovely play with U, and F and E. But the adult stress levels were not as relaxed as planned!… GRrrrrr

Tonight, we went to the poling booth, and asha put both our votes into the booth for us, and we talked about elections and why we vote…

Good day had by all.

After CLASS we went to Beddgert for Fish and Chips.

We had planned on an evening on the beach, but the wind was cold, so we headed off to the warmth of the valley. We went for a slow stroll to the grave of Beddgellrt after our food, and Asha and I looked at the lichen on the trees. All the photos in this post are thanks to Paula…

And eventually home for mummys birthday cake.. very late and very very tired!

My thanks go to Paula for all the pictures in this post, as i hadn’t my camera with me!