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Archive for the ‘cfs/me’ Category

http://news.bbc.co.uk/1/hi/health/7881116.stm

“The group considered a range of complex issue in great depth taking full account of the views of patient groups and health professionals.”

And he added the court case was “diverting resources away” from NICE’s core work.

The hearing is expected to last two days and the guidance will remain in place until the judge gives his verdict.

Popularity: 39% [?]

Asha has been having lessons which I have payed for, but next week – from tomorrow the council is providing 5 free lessons for half term week.

I am quite excited by this as Asha is very nearly there, in so much as she wants to be able to swim with no float. is confident in the water, but just needs practice. Will five days make all the difference?

The ONLY hurdle for us is the small fact that I have to leave the house at 8.45 in order to get A to her lessons in time! (9.30 start) Anyone who knows me will know how hard this is off late with the cfs.

Vicki xx

Popularity: 16% [?]

Asha and mummy went to Piggery Pottery this morning, near Cwm Y Glo.

Umm. The play area is currently out of use, so that was a disapoitment, but we went to llanberis for that instead.

It cost £4.50 to buy a pig to paint. Then you pay £1 to paint.

So that was £5.50 to paint a pig which I can buy 6 for £7.58  bakerross

Umm.. Will i be going again? Probably, as Asha enjoyed it.. but value for money? I dont feel it is. If the Play area had been working, and she had been offered the chance to paint a stone or do the pottery wheel I may be more positive about it, but we wernt.

The staff however on the whole were very friendly and helpfull. The cafe was clean and the coffee was o.k.

Popularity: 19% [?]

After a week, nearly of incessent pain on mummys front. Very little sleep for Daddy, and Asha waking up most nights either crying due to cramp, or nightmares, we called it a day today.

Camp has been wonderfull, but we are all suffering too much. Mummy can hardly walk again. Asha now has a snotty nose. and daddy is rather bad tempered. The kids and other parents have been great. The hosts have been truly angels, in what they have done for us. And I am greatfull for all the help and support. But I am suffereing.

So what did we do today?

got up. Steve and Asha had breakfast, I cant face it at the moment. I had cake later!
Slowly packed up, sorting out the washing, and things on the way. Asha fell asleep on Daddy for a while. She also couldnt stand up on the trampoline, her poor legs are that tired.

We sat and talked a lot, as none of us have a rush in us!. Steve played with the kids, and I pottered a bit. Eventually we got everything in the car, and went and dropped off some clothes someone had left by mistake, on the way home. We also opted for tea at petes eats, as we realised we had nothing in, and I couldnt face a shop!

Exhausted we got home. Asha had first bath, then spent two hours fighting sleep.. The silly girl.

Night all!

Popularity: 34% [?]

Mummy suffered today, so she spent most of the day in bed, whilst daddy looked after Asha and Mummy with a load of help off the others.

Mummy has very little idea of what happened today. However mummy did make some creams with Asha and we did enjoy making them. I had just woken up, and went looking for everyone.

After that, I read to Asha and she went to bed fairly early tonight.

Making creams and tinctures, is certainly fun!.. great workshop, and all the kids loved it, old and young!

Popularity: 24% [?]